Tuesday, December 23, 2008
This is a magic microwave shampoo cap that washes and rinses Avery's hair without water, while she sits in bed!!! Amazing!!!!
Avery had a great day. She was able to come off her bipap machine 3 times - for 3 hours each time. This will help her build up her respiratory muscles and test the left side of her heart out to also excercise it - to accomodate to pumping all that blood flow that it has never needed to.
All of her "numbers" and her exam tell us she is tolerating this well - but we are told it does take time for this process to occur.
She continues on her feedings through her jejunal tube - but we have had a hard time keeping it in place. It seems to spontaneously slip out into her stomach. ideally - they would like it past her stomach into her intestinal area so that if she does have any vomiting - she does risk choking or aspiratig on her feedings.
Avery was excitied to see her Aunt Jesse, Poppy, Gram Toole and Uncle Kevin come visit her today!
She is currently watching "Enchanted" (one of her favorite movies) with her dad and we will be getting an x-ray momentarily to see if the new feeding tube is in the correct position. Hopefully it will be - and we will all be settling in to get some rest.
--Thanks to all for your prayers, kind words and good wishes. I was with Avery on Christmas and she is doing even better today, as reported by my dad & sister!!!